A mum fighting to raise awareness of her daughter's rare condition has shared heartwarming footage of The Wiggles performing to her child.
A mum is using TikTok to help spread awareness of a condition her daughter was diagnosed with earlier this year called Leigh's Syndrome.
In one video, the mum shares heartbreaking footage from her daughter Zahra's last day before she passed away, when she got a visit from one of her favourite musical groups, The Wiggles.
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The video shows Zahra in her hospital bed, with The Wiggles' members Lucia Field, Lachlan Gillespie and and Dorothy the Dinosaur gathered on one side and her parents on the other.
The Wiggles begin a performance of 'Twinkle Twinkle,' the little girl raising her hands to join in with the dance moves.
The mum captioned the video: "This day was so special to us, Zahra was obsessed with the wiggles and for them to come and see her is a memory we will never forget."
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People have flooded to the comments in support of the mum and to offer their condolences.
One TikTok user said: "Fabulous The Wiggles were able to spend time with her, but raising her wee arms to do the actions, I lost it. Sweet dreams darling."
"This is so heart wrenching. So sorry for your loss. May little angel Zahra's soul rest in peace," another added.
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And a third commented: "Such a sad moment for her family especially her mum. May Allah give her patience ameen."
Zahra's mum has continued to use her platform to speak out about her daughter's condition.
As per the National Organisation For Rare Disorders (NORD) Leigh's Syndrome 'is a rare genetic neurometabolic disorder'.
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"It is characterized by the degeneration of the central nervous system (i.e., brain, spinal cord, and optic nerve)," the website continues. "The symptoms of Leigh syndrome usually begin between the ages of three months and two years, but some patients do not exhibit signs and symptoms until several years later."
The Cleveland Clinic adds: "An inherited gene change (mutation) causes Leigh syndrome. It’s a type of mitochondrial disease. Unfortunately, there isn’t a cure. The condition is fatal, with most children passing away by age three. In rare instances, the condition develops during adolescence or adulthood."
In another video Zahra's mum opens up a bit more about her daughter's story, while also thanking everyone who's commented and 'given [their] prayers' since Zahra passed away on 14 June.
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The mum resolves: "I only shared her story and videos so other families know they're not alone in their grief and I feel [...] the pain you're going through and with Allah's will, we'll all get through it."
Rest in peace Zahra.
If you have experienced a bereavement and would like to speak with someone in confidence, contact Cruse Bereavement Care via their national helpline on 0808 808 1677
Topics: Music, TikTok, Social media, Health
Poppy Bilderbeck